Epilepsy has always been a pretty uncool condition to have. Mine started after damage to my brain when I was seventeen. Nothing exciting about it, just a really nasty road traffic accident which bashed my head around, left a scar on my brain which short circuits the normal electrical pulses. Now under control due to medication, the seizures/fits only happen at night, just as I am drifting off to sleep. Grand Mal epilepsy... every muscle used to its extreme, every joint used repeatedly.. not cool at all. Not cool to watch either, MOMD making me safe, timing the seizure. After three minutes, there is a care plan which he has to follow, to phone 999, paramedics come out, make sure I am ok, insert suppositories of something serious which makes me sleep, stay until I am OK, or take me off to hospital if I am not. Then there is caring for him when I have had a fit, he is scared, uncertain if he has done the right thing, frightened for me...not good for him, I wish it would stop, go away and leave us alone. But not to be OH POOR ME about it, I will have a good day, just a bit quieter than I would have hoped! Thank goodness for the big cook yesterday, means I don't have to worry about it today.
Will be having another EEG soon, this records electrical activity in my brain. It requires tiny metal plates to be super glued to the scalp, lots of them...quite a fiddly business (I've got very long hair!), these are then attached to wires, which in turn are attached to what looks like a Sony Walkman, for those of you old enough to remember! It literally records what the brain is doing, and I have to make a record of what I am doing... so eight thirty til nine drinking inky black cofee with mega caffeine while watching BBC news, nine til nine thirty writing my blog etc etc... bit of a drag, but only have to do it for twenty four hours, of what is meant to be an normal day, but hell, what would my neurologist think of my 'normal day', dull to be honest, so spice it up with a few exciting moments, rescued orphans from house fire, fought dragon, kayaked through rapids, just a few things to keep him interested.
But on a more serious note, it is a condition I could do without, but it isn't a biggy. There are other things I could do without as well... there are mice in the flat, I could do without them, I have too many mugs, I could do without them, none of them biggys either. Infact, I am very lucky, I have a lovely flat, a very cute Dave the Rabbit, a whole load of lovely friends, and of course the MOMD. I have a fridge full of food, electricity to keep the lights working, gas to keep the cooker working, a hanging rail of clothes to keep me warm. Hellfire, I got it all... Now to sleep on comfortable sofa with grumpy Dave the Rabbit, who I caught under the bed, making a nest of some of the most important, and now shredded paperwork I own!
2 comments:
you were missed this morning, however will be back soon. Traffic crap, but as you say small beer. Alone now in flat looking at Chaos lidtening to Adele and remembering when I would have given anything to clear up anothers mess! Lov L
Yes, I was sorry not to be able to see you, esp as you are away for a long time now. I think some things proportionalise others, but I remember what my dad used to say... will this matter as much in an hour, a day, a month, a year? That makes sense. Some of it does, but most of it doesn't. Miss you heaps love, take care. Much love x
Post a Comment